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Funding for Spinal Muscular Atrophy medicine w/ Fiona Tolich: December 9, 2022

Funding for Spinal Muscular Atrophy medicine w/ Fiona Tolich: December 9, 2022 Funding for Spinal Muscular Atrophy medicine w/ Fiona Tolich: December 9, 2022, 11.37 MB
Fri 9 Dec 2022

Biogen has announced that SPINRAZA (nusinersen) – a first-of-its-kind medicine – is the first medicine funded by Pharmac for Spinal Muscular Atrophy (SMA), the number one cause of genetic death in Kiwi children under two.

SMA is a rare genetic disease that can have a devastating and life-changing impact. In its severe forms, SMA can cause paralysis and difficulty with the most basic functions of life, like breathing and swallowing,3 with babies and children possibly unable to hit major motor milestones like rolling, sitting, crawling, standing, or walking.

Joe spoke to Fiona Tolich a long-term campaigner and advocate for SMA, and a Trustee of Patient Voice Aotearoa, about how significant this is.

New Zealand Sign Language Census videos w/ Lachlan Keating: December 9, 2022

New Zealand Sign Language Census videos w/ Lachlan Keating: December 9, 2022 New Zealand Sign Language Census videos w/ Lachlan Keating: December 9, 2022, 15.69 MB
Fri 9 Dec 2022

Stats NZ has created 80 New Zealand sign language videos for the 2023 census.

The project was a joint collaboration between the Deaf Community, Deaf Aotearoa and Victoria University of Wellington.

They hope this will make deaf people feel more included around census time.

David spoke to Lachlan Keating from Deaf Aotearoa about the topic

COP15 w/ Stephen Hartley: December 8th, 2022

COP15 w/ Stephen Hartley: December 8th, 2022 COP15 w/ Stephen Hartley: December 8th, 2022, 11.05 MB
Thu 8 Dec 2022

The COP15 Biodiversity summit in Montreal, Canada is set to begin today. 

The conference of parties is set to specifically target issues of biodiversity and how it links to improving our climate. 

The conference was initially meant to take place in China a couple years ago, but was delayed and eventually relocated due to covid restrictions. 

To learn about the conference's big issues, Liam spoke to Stephen Hartley, from Victoria University of Wellington about the current state of Biodiversity and what this conference should aim to achieve.

 

Amnesty Write For Rights w/ Shaun Greaves: December 8th, 2022

Amnesty Write For Rights w/ Shaun Greaves: December 8th, 2022 Amnesty Write For Rights w/ Shaun Greaves: December 8th, 2022, 11.69 MB
Thu 8 Dec 2022

Amnesty International is soon launching their Write for Rights campaign. 

The advocacy group is calling on people from around the world to take part in the campaign aiming to free various people wrongly imprisoned.

This includes writing letters, social media posts, and signing petitions. 

To learn more, Liam spoke to Shaun Greaves, the executive director of Amnesty Aotearoa, about the campaign at home and around the globe. 

 

The Value of Art Galleries w/ Te Arepa Morehu: December 8th, 2022

The Value of Art Galleries w/ Te Arepa Morehu: December 8th, 2022 The Value of Art Galleries w/ Te Arepa Morehu: December 8th, 2022, 17.55 MB
Thu 8 Dec 2022

Auckland Mayor Wayne Brown has recently criticised Toi O Tamaki Auckland Art Gallery, calling it one of the most uneconomic buildings in the city. 

He also compared the institution's visitor numbers to that of a dairy, saying it wouldn’t be sustainable in the latter circumstances. 

That being said, Toi O Tāmaki focuses on various projects and systems beyond garnering sales and visitors for their exhibitions. 

To learn more, Liam spoke to Te Arepa Morehu, the galleries head of Kaupapa Māori, about the purpose of the gallery beyond visitor numbers.

Calls for a Commissioner for Animals w/ Will Appelbe: December 8, 2022

Calls for a Commissioner for Animals w/ Will Appelbe: December 8, 2022 Calls for a Commissioner for Animals w/ Will Appelbe: December 8, 2022, 9.5 MB
Thu 8 Dec 2022

SAFE is urgently-renewing calls for a Commissioner for Animals, following the Ministry for Primary Industries’ investigation into heat stress-related deaths of several pigs on a livestock truck earlier this year.

The deaths occurred aboard a livestock truck and trailer operated by Te Awamutu company Osbourne’s Transport 

Joe spoke to Will Appelbe, Head of Investigations at SAFE for Animals to get some insight into the issue.

The Wire w/ Liam: December 8th, 2022

The Wire w/ Liam: December 8th, 2022 The Wire w/ Liam: December 8th, 2022 , 104.44 MB
Thu 8 Dec 2022

Liam and Joe take on the Thursday Wire:

Tuva’a has his regular chat with health minister Andrew Little.

Liam had a chat with Shaun Greaves from Amnesty International about their Wrie for Rights campaign.

Joe speaks to Will Appelbe, Head of Investigations at SAFE for Animals about their calls for the government to improve oversight following a heat-stress related death.

Liam also spoke to Stephen Hartley from Victoria University f Wellington about the COP15 biodiversity summit

He also speaks to Levi Brinsdon-Hall from Delicious Revolution about a project looking to bring a sunflower garden to Starship hospital.

And Liam  toTe Arepa Morehu from Toi o Tamaki Auckland Art Gallery to discuss the value art galleries bring to our city.

Sunflowers for Starship w/ Levi Brinsdon-Hall: December 8, 2022

Sunflowers for Starship w/ Levi Brinsdon-Hall: December 8, 2022 Sunflowers for Starship w/ Levi Brinsdon-Hall: December 8, 2022, 13.15 MB
Thu 8 Dec 2022

Delicious Revolution has kicked off an ambitious nationwide crowdfunding campaign to plant 20,000 sunflowers in support of Starship children’s hospital.

Director of new Auckland-based start-up, Delicious Revolution, Levi Brinsdon-Hall has teamed up with the Starship Foundation to create an immersive sunflower installation across four different gardens at the Greenlane Clinical Centre, a location where many Starship children receive treatment. His vision is to bring joy to patients, staff and the community.

Joe chats with Levi Brinsdon-Hall about the project.

 

Job Search Confidence Among Young People w/ Kaiārahi at Talent Rise New Zealand, Jessica Te Moananui

Job Search Confidence Among Young People w/ Kaiārahi at Talent Rise New Zealand, Jessica Te Moananui Job Search Confidence Among Young People w/ Kaiārahi at Talent Rise New Zealand, Jessica Te Moananui , 7.18 MB
Wed 7 Dec 2022

A new report from Talent Rise, a recruitment specialist, comprising the experiences of over 200 young people has suggested that job search confidence is low and fear of the future relating to gaining employment is high.

News and Editorial Director Jessica Hopkins spoke to Kaiārahi at Talent Rise New Zealand, Jessica Te Moananui about the report, and why young people in Aotearoa are struggling to gain meaningful employment. 

Here is that interview. 

Student-led petition in support of Tertiary Education Union strike action w/ Izzy Renton and Maria Kopilevich: December 7, 2022

Student-led petition in support of Tertiary Education Union strike action w/ Izzy Renton and Maria Kopilevich: December 7, 2022 Student-led petition in support of Tertiary Education Union strike action w/ Izzy Renton and Maria Kopilevich: December 7, 2022, 10.44 MB
Wed 7 Dec 2022

A group of students at the University of Auckland have launched a student-led petition in support of Tertiary Education Union strike action.

This comes as University of Auckland staff who are members of the union have extended a ban on entering or releasing student grades until Thursday. 

News and Editorial Director Jessica Hopkins spoke to two University of Auckland Masters students behind the petition, Izzy Renton and Maria Kopilevich, who are encouraging people to sign their petition before they send it to the University tomorrow.